In 2015, Riley Harper was born. Riley is a special girl who makes everyone around her feel good.
A little over a month ago, Riley started having seizures. Naturally, the family was all terrified but stayed hopeful that everything would be okay. Some tests were performed, and the news kept getting worse and worse. Our little Riley, only six years old, was diagnosed with CLN3 Batten disease. Batten is an extremely rare genetic disorder with the bleakest possible prognosis. Not only is this disease fatal, but its progression is brutal. Most children diagnosed with this disease do not live through their teenage years.
The family has very few options. There's a glimmer of hope at the Texas Children's Hospital in Houston, where they are conducting early trials to combat Batten's Disease. It's our only shot. Riley's parents will begin regularly flying to Houston from Indiana in July to start treatment. Anyone who has ever been involved in prolonged medical treatments knows how expensive it is, not including this travel burden and the complications of trying to get time off from their jobs and everything else.
Please if you, or anyone you know can give to Riley and her family to help, then please do. Any amount will help them. Please, please, please share this info with anyone you can. We love and appreciate you! Thank you so much! Mix 105 is #RileyStrong for central Indiana.
A little over a month ago, Riley started having seizures. Naturally, the family was all terrified but stayed hopeful that everything would be okay. Some tests were performed, and the news kept getting worse and worse. Our little Riley, only six years old, was diagnosed with CLN3 Batten disease. Batten is an extremely rare genetic disorder with the bleakest possible prognosis. Not only is this disease fatal, but its progression is brutal. Most children diagnosed with this disease do not live through their teenage years.
The family has very few options. There's a glimmer of hope at the Texas Children's Hospital in Houston, where they are conducting early trials to combat Batten's Disease. It's our only shot. Riley's parents will begin regularly flying to Houston from Indiana in July to start treatment. Anyone who has ever been involved in prolonged medical treatments knows how expensive it is, not including this travel burden and the complications of trying to get time off from their jobs and everything else.
Please if you, or anyone you know can give to Riley and her family to help, then please do. Any amount will help them. Please, please, please share this info with anyone you can. We love and appreciate you! Thank you so much! Mix 105 is #RileyStrong for central Indiana.
